genderjumper: cartoon giraffe, chewing greens, wearing cap & bells (Default)

It's been over 10 years since I was diagnosed gluten-intolerant. I have what my nutritionist called "silent Celiac", in that my body doesn't really know gluten is bad for me; we just happened to catch it and confirm it after some irregular bloodwork. I don't have to sweat cross-contamination the way most Celiacs do; just avoid wheat and everything is fine.

But wheat is everywhere, as are other allergens new and established. I've spent a significant of the past decade relearning how to eat, how to plan, how to prepare, how to keep my dietary limitations from becoming others' problems.

But I've also spent a lot of that time exasperated, under-resourced, and falling apart when something doesn't go the way it needs to. When the backup plan falls through, or there is no backup plan. When one little detail throws everything out of balance.

And I'm just now starting to admit that this amount of effort just to be able to feed myself is a burden in my life, and that if it were easier to accommodate, my quality of life would be a lot better.

In other words, I'm finally starting to understand why Celiac Disease is considered a disability.

genderjumper: cartoon giraffe, chewing greens, wearing cap & bells (Default)
As someone who has done a lot of unpaid labor and a lot of virtual events, I appreciate the occasion of a good debrief. My trip to NYC was such a slog that I'm going to need to debrief on multiple fronts, so this is gonna be practice:

Debrief V0.1 )

Overall, though, I can't help wondering if the era of the road trip is over. Every stage is way harder than it needs to be, and every place I stopped is one mobile outage away from wasting away.

I'm so glad I enjoyed it while I had the chance.
 

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